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Our Aim

Vital medical research costs a lot of money and the Rett Syndrome Australian Research Fund (run by a group of volunteers who have daughters with Rett Syndrome) organize Angel week annually when angels will be sold to raise funds. Angel ornaments $10, key rings $10, pins $5 and wristbands $3 are sold at Ed Harry Menswear Stores and Mr Minit Stores across Australia in an effort to keep the momentum for groundbreaking research moving at a pace.
All profits are spent directly on this research.

Our Goal

Our long term dream is that some day we may be able to have newborn screening for Rett Syndrome, and then be able to start preventative treatments even before the girls show any signs of the disease.

Professor John Christodoulou says "By understanding better the biology of Rett Syndrome, we will be in a position to design specific treatments to slow or halt the progression of the disorder, or perhaps even a cure".

In anticipation of such a breakthrough, the Australian Research Team has forged collaborative research links with other groups in Australia and around the world with a view to being able to undertake clinical drug trials in the next few years.

Patrons of the charity are:

• Brett Aitken
  Olympic Gold Medallist 2000 (has a daughter Ashli with Rett Syndrome).
• Susie Maroney
  Ultra Marathon Swimmer

Latest News

NEW: Angel Week Media Release

CLICK HERE to download the official "Angel Week Media Release" (Word doc). Feel free to take it to anyone who can help our cause.

NEW: Corporate Christmas Cards.

Anyone who purchases these cards the money will go directly to Professor John Christodoulou at the Children's Hospital.

Xmas Cards Catalogue
Xmas Cards Order Form

Or CLICK HERE to order directly from the Childrens Medical Research Institute web site.
Be sure to included Rett Syndrome in the comments box when ordering.

CHECK FOR EVENTS IN YOUR STATE

Is there an event being held in your state? Be sure to regularly visit your state's events page to be up to date with what's happening.

If you are organinzing an event, send details to Joe at gdelosa@bigpond.net.au and have it promoted on your state's page.
Note: All events require approval.

Exercise may improve brain disorder....

Nine News article on the benefits of physical and mental exercise improving symptoms of our angels.

Related Nine News Video Clip
  Screened Fri 20th Jun 08

Rett Gene Full Of Surprises ....

Rett Reversal in Mouse Model ....

Gene Breakthrough ....

Angels and ornaments will be sold at all Ed Harry and Mr Minit stores around Australia.

Download 2008 brochure here

Sponsors

CLICK HERE for YouTube Rett Videos